This is some of my sons birthday invitation.
Artist Statement
11 years ago
Tuesday, July 15, 2008
Sunday, July 6, 2008
Febrile Seizures
http://www.ninds.nih.gov/disorders/febrile_seizures/detail_febrile_seizures.htm#104063111
Our oldest boy has seizures. His first four happened just before his first birthday. The first happened around 5 pm and the second around 9 pm and then the next 2 happened with in a minute of each other around 9 am. These all happened within 12 hours. I was at home with him for the first. I called looking for my husband at our friends home and he came racing home and we took him to the hospital. This was our first mistake. I should have let his seizure finish and then take him in. We were first time parents at this and were in shock and thinking our little guy was dying. I knew he was having a seizure but he looked like he was having trouble breathing too. We were very soon thrown into the world of doctors, worries and panic. Our family doctor has been awesome through our experience. Some other doctors have not.
Now our son has had 9 in total with the last being last February. We are definitely more informed now and hope to inform and support and share our stories with other families dealing with the same febrile seizures. When we first started to share our stories about our son and his seizures we got a lot of different responses.
From some of our religious family members we were told that we should baptize him, others were worried about damaging his mental capabilities after the seizure, and other thankfully were calm and very supportive. We were lucky because my parents witnessed and had dealt with febrile seizures before. I had one when I was 1 year old just after my immunization.
My husband and I were determined to learn more about these seizures and reassure and inform people about them. A lot of people compared his seizure to a kid holding his breath and a kid having a temper tantrum. This was not even close. We wanted our family and friends to be well informed about these seizures since he can have them when ever he was running a temperature. Most of my immediate family has witnessed one of his seizures. My husbands family though has not and we really wanted them to be able to witness what it would look like. This I know sound horrible, but if they could see what it would look like they would know what was happening and we think be able to react calmer.
I have dealt will all of his seizure except one. I was either by myself, with my husband or with family. At the beginning my husband and I thought we could prevent them if we could keep his temperature down... and we found out very quickly that if they are going to happen they just do. There is nothing we can do to prevent them. I guess that is not exactly true you can give your child seizure medication which we do not want to do since they are just febrile seizures and do not cause any long term effect on him.
I hope this blog gets noticed and I can communicate with other parents of children who have febrile seizures.
Our oldest boy has seizures. His first four happened just before his first birthday. The first happened around 5 pm and the second around 9 pm and then the next 2 happened with in a minute of each other around 9 am. These all happened within 12 hours. I was at home with him for the first. I called looking for my husband at our friends home and he came racing home and we took him to the hospital. This was our first mistake. I should have let his seizure finish and then take him in. We were first time parents at this and were in shock and thinking our little guy was dying. I knew he was having a seizure but he looked like he was having trouble breathing too. We were very soon thrown into the world of doctors, worries and panic. Our family doctor has been awesome through our experience. Some other doctors have not.
Now our son has had 9 in total with the last being last February. We are definitely more informed now and hope to inform and support and share our stories with other families dealing with the same febrile seizures. When we first started to share our stories about our son and his seizures we got a lot of different responses.
From some of our religious family members we were told that we should baptize him, others were worried about damaging his mental capabilities after the seizure, and other thankfully were calm and very supportive. We were lucky because my parents witnessed and had dealt with febrile seizures before. I had one when I was 1 year old just after my immunization.
My husband and I were determined to learn more about these seizures and reassure and inform people about them. A lot of people compared his seizure to a kid holding his breath and a kid having a temper tantrum. This was not even close. We wanted our family and friends to be well informed about these seizures since he can have them when ever he was running a temperature. Most of my immediate family has witnessed one of his seizures. My husbands family though has not and we really wanted them to be able to witness what it would look like. This I know sound horrible, but if they could see what it would look like they would know what was happening and we think be able to react calmer.
I have dealt will all of his seizure except one. I was either by myself, with my husband or with family. At the beginning my husband and I thought we could prevent them if we could keep his temperature down... and we found out very quickly that if they are going to happen they just do. There is nothing we can do to prevent them. I guess that is not exactly true you can give your child seizure medication which we do not want to do since they are just febrile seizures and do not cause any long term effect on him.
I hope this blog gets noticed and I can communicate with other parents of children who have febrile seizures.
Friday, July 4, 2008
What really matters
Check this video out. It really makes you think about what is more important. I know that many times a day my husband and I complain about things not going our way or us having bad luck. We are pretty well off. We have a lot of luck in our lives and are very happy to have the special things we do have. I guess what I am trying to say is we often think about us and ourselves instead of others and I think that we should try to focus more on others and how we can help.
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Wednesday, July 2, 2008
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